Two weeks later we held our collective breath as we sat, for the first time in either of our lives, in an oncologist’s waiting room. A muted big screen monitor screened footage of snow falling among the golden, shimmering aspen leaves in a serene idyllic mountain setting. A stunning arrangement of pine boughs and poinsettia acknowledged the jolly holiday season. A tabletop held neatly displayed brochures on a variety of relevant topics. Cancer support groups. Caregiver resources. A newsletter offered the BOLD Headline: California End of Life Option Act: Hoping for the Best, Planning for the Worst, and Knowing You Options. We weren’t in Kansas anymore.
Everyone was so positive!! The door to the inner sanctum opened frequently, as cancer patients and caregivers made their way to what, I was to discover later, was the multi-chair chemo center. Smiles abounded. Staff members welcomed patients back, engaging in congenial small talk. A jovial woman navigated her walker to a waiting room chair, smiling broadly under her crocheted cap to cover her hairlessness. “You still have your hair!” she commented to someone she apparently knew from previous chemo sessions. “So far!” he replied, smiling broadly. How could people here be so upbeat? This was an oncologist’s office. Cancer, the most evil, unfair and terrifying demon brought people here, yet they were exchanging smiles, pleasantries and holiday cheer. Christmas was just three days away, and the spirit of positivity abounded in a CANCER office.
Hubby and I were the exception to the light hearted mood. We were moments from the news we had been awaiting. My head was filled with hope - and fear. The “many voices of me” played an endless loop of happy endings, along with terrifying “life without Hubby” nightmares. We thought we were ready to find out….
No one can prepare for the news we received. Hubby’s doctor was gentle but direct. He told us how sorry he was that he didn’t have better news. Outlined detailed treatment options for the rare cancer threatening to steal my lifelong partner from me. Offered details about oncology specialists we should contact for second (and third, and fourth) opinions, and gave us his personal email for questions that may arise over the long holiday weekend. I had stopped trying to take notes, and secretly had my phone voice recorder capturing his words in order to play it back when my heart wasn’t pounding louder than his voice.
Through it all, Hubby listened intently, expressionless. No questions. No overt reaction. He may as well have been listening to a judge pronouncing a verdict after one of his court appearances. His only words to the doctor were, “Man, I’d hate to have your job.” That was it. A few closing comments followed, and the doctor gave Hubby an “I’m sorry” handshake and pat on the back as he exited the room.
We hadn’t uttered a word to each other. An examination table separated our two chairs, making even hand holding impossible as Hubby received the prognosis and time line. We had controlled our emotions in those agonizing minutes. Once the doctor left the room, we stood up, walked to each other and shared an embrace unlike any I could remember. I didn’t know what to say. But he did. Two words defined the man who has put others before himself his entire life. “I’m sorry.” As he received his “sentence”, my protector felt the rush of guilt for spoiling my happily ever after. We hugged as I melted into his still strong embrace. We wallowed in that tragic moment for a mere few seconds, then shook it off and put on our game face. There was no time to waste. Cancer wasn’t taking a break inside my Big Kahuna, and we couldn’t either.
We were unusually quiet as we headed home into the last light of what was a gorgeous SoCal winter sunset. As he drove, Hubby’s first comment was, “You’re going to be fine, I’ve got everything in place for you…” I stopped him mid-sentence. I was not ready. At the same time, I understood my man. Always putting others first. ALWAYS putting my needs first. He was about to begin the toughest battle of his life, yet his first thoughts centered on my future.
We made the decision to invite our son, daughter and their families to come to the house that evening, so we could tell them the news. Christmas was around the corner and our preschool and infant grandchildren were giddy with excitement. The juxtaposition of Hubby’s bombshell and Santa’s pending arrival had to be carefully played. Daughter held her 5 month old daughter, son attended to his 2 year old, happily eating blueberries, and son-in-law kept almost 4 year old son distracted…as their father found the words none of them wanted to hear. Like the doctor, he was brief and direct – and immediately assured them that he was ready to fight the good fight. Everyone guarded their emotions from the littles in the room, who were too young to feel the punch to the gut that followed the announcement. But their faces spoke volumes. Quiet tears mixed with bouncing baby girl and her sweet smile. Blank stares into the unknowns of their father’s future, against the playful banter of cousins happily engaged with treasures in Gigi and Grandpa’s toy closet. As unfortunate as the timing of the news, the joy of children at Christmas would prove to be a much needed diversion...
Christmas Eve was spent quietly, a seismic shift from the typical Hultman Christmas Eve Spectacular of the previous 38 years. Daughter hosted a Christmas Eve Pajama Party for our immediate family – the same party of 8 with whom we shared The News two nights earlier. Hubby continued his traditional reading of The Night Before Christmas to the less-than-attentive toddlers! Son, Daughter and I, on the other hand, didn’t want to miss a word. The significance of this Christmas Eve custom had a new poignancy. I recorded all of it – squirmy, chatty grandkids and all. I pray we will repeat the tradition next year and beyond.
Our quiet, mutually agreed upon giftless Christmas morning started with a kiss. We headed back to Daughter’s home, greeted by oldest Grandson’s announcement that Santa had indeed come, and the inquiry to both Grandpa and me, “Did Santa bring you coal or presents?” I assured him we were on the Nice List which brought him great relief! Daughter, our designated Santa delivered joyfully wrapped presents to their intended recipients.
In those first few days after the diagnosis, we rode an emotional roller coaster of fear and uncertainty, wistful hope and forced positivity. In the weeks since, we are finding our footing. Hubby feels well enough to continue working, with a few tweaks to his calendar. His kidneys are healing and dialysis may soon be discontinued permanently. His sense of humor is intact - his biggest compliment coming from the staff of his nephrologist's office, "Mr. Hultman, you are my favorite patient!" There have been some terrifying moments too, to be shared in a future post, along with immeasurable gratitude to family and friends for their seemingly limitless support. I don’t think Hubby comprehended how his lifetime of generosity and selflessness touched others. He has been moved to tears more than once – not by the fight he faces – but by the avalanche of kindness, compassion, prayers and support from so many. After one particular act of thoughtfulness, he commented, “People are being so nice,” as his eyes welled up and voice cracked. Wiping away the tears, embarrassed by his tearful moment, he said, “I’m sorry.” Honey, you have nothing to apologize for. You are still the strongest person I know. I promise to stay #kahunastrong
